My name is Adele Webb. I came into Patient and Public Involvement as a carer for my partner and my mother back in 2013. I have a background in schools, but was not an academic or a scientist. Along my learning curve, I learned the importance and value of having a strong public voice throughout the research pathway, to ensure that research is relevant, accessible and will actually make a difference.
I have always aimed to bring lived experience to what I have undertaken, so my work has covered end of life and palliative care, dementia, genomics, cancer and emergency care. It has extended to Public Health with ARC South West (originally ARC West) and a five-year tenure on a National Institute for Health Research funding panel for Health and Social Care Delivery Research.
I have worked with a number of organisations in various roles, including being a member of steering committees, regional boards and advisory groups, as well as being an actual participant. I also help deliver introductory training in PPIE and Evaluation.
More recently, I have ventured into a wider variety of roles, such as interviewing, being a Dragon on a Dragons’ Den project awarding funding to enrich community research projects and helping to set up a Bristol event to focus on the menopause. We coproduced this with a group of women from all over the country and went on to produce a video entitled ‘What women wish they’d known about the menopause.’ It has been well received and made freely available.